Albinos Demand Special Fund Top story

2781 Views Kampala, Uganda

In short
Sekyanzi also called for special consideration of albinos in schools, saying their exams should be printed in large fonts because of visual challenges. He also called for the inclusion of albinism in the Universal Primary Education policy, which he said doesnt address their concerns.

The Executive Director of Uganda Albinos Association Jude Sekyanzi wants government to set up a special fund for albinos.

Speaking during the launch of the parliamentary week group this morning, Sekyanzi said the fund will help people living with albinism to live a healthy life despite the discrimination.
 
He explained that currently people with albinism struggle to access support and services due to their condition, adding that a special fund will go a long way in transforming their lives. 
Government is running a chain of funds for women, youth and the elderly, who are all categorized as special interest groups. Sekyanzi called for special consideration of albinos in schools, saying their exams should be printed in large fonts because of visual challenges. 

//Cue in: "Honorable Speaker i…
Cue out:… of big fonts"//


The Speaker of Parliament, Rebecca Kadaga who launched the Parliament week, said there is need to legislate against the discrimination of albinos. She promised to initiate debate on albinism and how to support them when parliament resumes.


//Cue in: "The level of…
Cue out:… and public"//


Kadaga also called on persons with albinism to apply for Parliamentary service jobs that will be advertised soon. The Parliament week is aimed at bringing Parliament closer to the people, through debate between the public and MPs, display of roles of MPs and different departments of Parliament. 

The week has also been dedicated to mobilizing funds to build a facility for people with albinism. So far Shillings 75 million has been raised in the campaign, which targets to raise Shillings 5 billion for the construction of a medical center and school for albinos. There is an estimated 15,000 persons with albinism in Uganda.

 
About albinism


Albinism is a non-contagious, genetically inherited condition that affects people worldwide regardless of ethnicity or gender. It results from a significant deficit in the production of melanin and is characterized by the partial or complete absence of pigment in the skin, hair and eyes. 

In order for a person to be affected by albinism, both parents must carry the gene and, in that case, there is a 25% chance that a child will be born with albinism at each pregnancy.

 

About the author

Alex Otto
“Journalism that changes lives is my goal,” Alex Otto has said on more than one occasion. That is his career’s guiding principle. Has been since he was a radio journalist in the northern Ugandan town of Gulu in 2009.

Otto passionately believes his journalism should bring to the fore the voices of the voiceless like the shooting victims of Apaa. Otto tries in his journalism to ask tough questions to those in positions of authority.

Based in the Kampala bureau, Otto is especially interested in covering agriculture, politics, education, human rights, crime, environment and business. He has reported intensively on the post-conflict situation in northern Uganda.

A URN staff member since 2014, Otto previously worked with The Observer Newspaper from 2012 to 2013 and later the Institute for War and Peace Reporting IWPR based in Gulu.

He was the URN Gulu bureau chief 2014-2016.